Research Project
IDEA4RC: Intelligent Ecosystem to improve the management of rare cancers
A data space for the governance, the sharing and the reuse of existing multi-source health data.
Where: international
Where: international
Challenge
Rare cancers management suffers from data scarcity, heterogeneity (e.g. of languages, standards, formats), dispersion and restrictions from data providers (e.g. hospitals) due to data sensitivity and protection.
Approach
Hence, the need to create a framework for a European ad-hoc data ecosystem, encompassing multiple sources in multiple EU countries and supported by:
- A federation of interoperability 'capsules' based on FHIR APIs
- AI tools for multi-language data processing and analysis,
- A multimodal data navigator to assist clinicians and researchers in finding and accessing available data of stipulated quality
- Modern trust-building technologies (e.g. blockchain) to orchestrate data governance and incentivise data sharing and altruism.
The IDEA4RC project extends HL7 FHIR concepts to a distributed data sharing environment by: realising a set of AI-tools ensuring interoperability and access to structured data from different sources, leveraging novel AI approaches for achieving multi-lingual Natural Language Processing (NLP) to allow data extraction and standardization of unstructured data (e.g. text), data interpretation and datasets integration, implementing a data governance facilitating the negotiation of relevant data sharing agreements, the collection of patient consent and the enforcement of accountability.
Engineering is responsible for the design and implementation of the data integration flow from heterogeneous sources and the interface for defining patient cohorts based on HL7 FHIR standards. Engineering is also involved in the development of the platform enabling the use of predictive models based on artificial intelligence.
The project has received funding from the EU Horizon 2020 (contract no. 101057048).
Results
Improved access to optimal diagnosis and treatment
Increased research and knowledge on rare cancers
Increased research and knowledge on rare cancers
Granted equal access to high quality specialist care
Technologies
Cloud
![]()
Intelligent Ecosystems for a Cloud Strategy.
AI & Advanced Analytics
![]()
The power of big data leads services, products and processes to a higher level of "intelligence".
To know more
Recommended for you
Explore additional content associated with the topic
